Welcome to John's Personal Page
On Sunday, April 30, 2017, I will be participating in the Paris to Ancaster Race in support of St. Joseph’s Healthcare Hamilton as part of Team Scleroderma Research. You may be aware that we have been living with Scleroderma for almost 40 years.
When Sharon was first diagnosed as having Scleroderma there was very little knowledge and no support for patients and care givers. Our situation seemed hopeless. Health care practitioners at best could deal with the symptoms that Sharon was enduring at the time. Extreme fatigue was the first battle. I remember putting her socks on her before I went to work. She couldn’t reach her feet. She would spend the rest of the morning getting herself to the couch. A neighbor would come over and help her with lunch. She would still be on the couch when I got home from work. If we went anywhere, Sharon, in her 20’s would need a wheel chair. The connective tissue started to tighten and her skin hardened. At the time, classic scleroderma progression. Extensive pool therapy, connective tissue massage, dedicated therapists and family support helped slow the progression of the disease. The skin around Sharon’s face contracted so much an orthodontist with an interest in scleroderma designed and implemented a treatment program that involved extraction, braces and head gear just so Sharon could close her mouth. Sharon’s hands closed up. They were useless. The remedy was to remove her knuckles to open her fingers to a fixed position. At the time, a pioneering approach. Now, at least she could grasp things. These were the first years. Every day remains a challenge.
Today, research is being carried out right here in Hamilton at St. Josephs and around the world. Every research project brings us closer to the answers that will give people living with scleroderma relief. Every discovery about this disease gives immense hope to those with scleroderma.
When I ride on April 30th, I hope that the money raised by my friends, family and colleagues eventually has Sharon and others living with scleroderma enjoying a life free of this debilitating disease.
Right now the exact cause is not known. There is no cure. There are no scleroderma survivors. Please help to change that. Donate now to John Pierroz riding for Team Scleroderma Research! Click on the BLUE 'Donate Now' Icon across from our picture not the PINK 'Donate' Icon in the upper right hand corner of my page.
Thanks for your support!
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